Subject Pages A-Z

Antineoplaston

Susan — Mon, 18 Aug 2008 16:35:35 -0700

Antioxidants

demerson — Wed, 03 Sep 2008 11:24:28 -0700

I take a long list of supplements many of which are antioxidants. Most of us mmers have heard that stimulating one's immune system is bad for myeloma as mm is a cancer of the immune system. However, I believe that my antioxidant supplementation helps me stay in complete remission. I have not had a cold for years. There is specific info on the beating-myeloma.org website about supplements as well as papers about antioxidant supplementation during chemotherapy and radiation.

Aredia

Susan — Mon, 18 Aug 2008 16:27:30 -0700

Artemisin

demerson — Fri, 29 Aug 2008 10:26:44 -0700

I have no personal experience with artemisinin. This therapy has been discussed sparingly on the acor and mmsupport listservs but is still being studied at this point- 8/29/08.

Bisphosphonate

Susan — Mon, 18 Aug 2008 08:00:29 -0700

cataracts

demerson — Thu, 13 Nov 2008 07:03:46 -0800

After my high dose steroid therapy included in VAD treatment I developed cataracts in both eyes. I underwent surgery in each eye to remove the cataract. I consider cataracts to be one of the easier side effects of my conventional therapy to deal with.

CC-4047-palidomide

demerson — Fri, 19 Sep 2008 10:21:08 -0700

Wikipedia had no page for CC-4047- the page for lenalidomide referred to CC-4047 which is why I am including the wiki article in this subject page.

Celiac

demerson — Tue, 23 Sep 2008 06:31:57 -0700

While there is no known scientific link between myeloma and celiac disease there are several beating-myeloma members with celiac. So has the link just not been identified yet? Is celiac disease simply a sign of a weakened immune system and therefore a precursor of myeloma? At the very least, it makes sense for those who suspect celiac disease or with a celiac diagnosis to learn about the symptoms, treatments, diagnostic testing, etc.

celiac disease

demerson — Tue, 23 Sep 2008 06:29:51 -0700

Chemo Brain

Susan — Mon, 15 Sep 2008 08:06:46 -0700

Chemotherapy

Susan — Fri, 19 Sep 2008 07:46:13 -0700

Curcumin

rvance — Thu, 07 Aug 2008 19:02:01 -0700

here are david's thoughts

Cyclopamine

rvance — Mon, 11 Aug 2008 06:02:29 -0700

this is david's thoughts about Cyclopamine

Cytoxan

demerson — Tue, 19 Aug 2008 13:27:18 -0700

I underwent two rounds of cytoxan in September of 1995 after five rounds of VAD failed to put me into complete remission.Â The main side effect that I developed was irritable bladder syndrome.Â Urgency to urinate, waking up twice or three times at night to urinate, etc.Â There is a long term risk of developing bladder cancer.

Dexamethasone

demerson — Fri, 29 Aug 2008 10:45:42 -0700

While I have no personal experience with dex specifically, I have undergone high dose steroid therapy in the form of doxorubicin, the D in VAD- doxorubicin therapy really threw me for a loop when I was on this therapy- not only did I feel UP when I began the therapy and DOWN when i came off the therapy, I gained almost 50 pounds during the 4 months while I was on VAD and developed cataracts in both eyes- a common side effect of high dose steroid use.

Enema

demerson — Fri, 12 Sep 2008 12:34:07 -0700

Like other aspects of the Gerson protocol I have had a coffee enema. I have undergone colon cleansing therapy however and can recommend it for general detoxification.

Fish Oil

demerson — Wed, 27 Aug 2008 10:39:20 -0700

I have been supplementing with both fish and cod liver oil in either soft gel or liquid form for more than 10 years now. I have always sought out and taken pharmaceutical grade fish oil. I do this for two main reasons -

1) fish oil has documented benefits for the brain, heart and blood all which were damaged by my toxic chemotherapy in the form of V.A.D., cytoxan and periphal blood stem cell transplant.

2) fish oil has documented antiinflammatory properties. Inflammation, I believe, is one of the causes of cancer.

Gerson Therapy

demerson — Thu, 11 Sep 2008 06:07:22 -0700

Though I juice regularly, I don't follow the Gerson therapy. I juice for general nutrition. The Gerson therapy is controversial and rigorous but many who have tried the therapy swear by it.

Metabolic Syndrome

demerson — Sun, 17 Aug 2008 08:46:24 -0700

MGUS

demerson — Thu, 25 Sep 2008 06:56:39 -0700

The prognosis and treatment for myeloma compared to mgus are very different. Some oncs believe that those with mgus or smm should "watch and wait." While I don't think an mgus dx means you should pursue conventional chemo, many members report benefits from lifestyle or complementary therapies like curcumin supplementation.

Multiple Myeloma

rvance — Mon, 11 Aug 2008 05:59:15 -0700

this is david's thoughts about Multiple Myeloma

Neuropathy

rvance — Mon, 11 Aug 2008 01:35:41 -0700

this is david's thoughts about Neuropathy

NPI-0052

demerson — Wed, 01 Oct 2008 09:52:01 -0700

I have no personal experience with NPI-0052. I have read a few posts on mmsupport, acor and this forum about the trials but I have no specific information.

Plexopathy

rvance — Mon, 11 Aug 2008 01:26:35 -0700

this is david's thoughts about Plexopathy

Radiation Therapy

rvance — Mon, 11 Aug 2008 01:29:35 -0700

Resveratrol

rvance — Mon, 11 Aug 2008 06:01:35 -0700

this is david's thoughts about Resveratrol

sauna

demerson — Wed, 15 Oct 2008 10:42:12 -0700

I sauna almost every day. I believe that the process helps me to detoxify (after years of chemo and radiation) and it relaxes me. I have read that raising one's body tempurature may make one's chemotherapy more effective.

smm

demerson — Mon, 13 Oct 2008 13:14:11 -0700

Rather than the standard prognosis to smm and mgus to watch and wait, Margaret's Corner talks of curcumin supplementation and possibly other complementary therapies.

Thalidomide

rvance — Mon, 11 Aug 2008 06:04:24 -0700

Thrombosis

rvance — Mon, 11 Aug 2008 06:03:39 -0700

this is david's thoughts about Thrombosis

Velcade

demerson — Fri, 15 Aug 2008 06:40:31 -0700

Vitamin D

demerson — Wed, 27 Aug 2008 10:20:45 -0700

Vitamin D is one of a number of supplements that I take daily. It is vitamin D 3 not D 2 that is reported to have numerous health benefits. Though I can't say that vitamin D in particular has benefitted me any more or less than my other supplements, it is probably the most positively posted supplement on the forum/listerv.

Zometa

Susan — Mon, 18 Aug 2008 16:31:22 -0700