Member Submitted Links

Myeloma Blogs of every type from mmers everywhere-

demerson — Thu, 04 Mar 2010 08:43:22 -0600

The link provided is to the mmsupport.org page that contains links to lots and lots of myeloma bloggers. David

Intitute for Myeloma and Bone Cancer Research- Q&A with Dr. James Berenson

demerson — Fri, 26 Feb 2010 09:39:49 -0600

This link it to the IMBI website which has a video of Dr. James Berenson talking about a range of myeloma issues. I consider Dr. Berenson was of the finest myeloma specialists out there. I consider this video to be one of the most complete and well outlined explanation of myeloma issues available.

David Emerson

NATURAL STANDARD HERB & SUPPLEMENT GUIDE

demerson — Tue, 05 Jan 2010 16:44:19 -0600

Covering 400 herbs and supplements, this reference provides the high-quality, up-to-date, unbiased information you need to advise your patients. No other book can match its expertise and attention to evidence! Each monograph is concise and easy to read, and includes uses, dosage information, safety considerations, and interactions with drugs and other herbs and supplements. At-a-glance research summaries and an alphabetical organization allow for quick lookup in busy settings!

mSMART

demerson — Sat, 02 Jan 2010 13:07:54 -0600

Our MISSION is to present the state of the art approach to management of these plasma cells disorders including myeloma, amyloidosis, and Waldenstroms Macroglobulinemia. Views expressed here are opinions of a group of experts, based on best available evidence

Clinical Trials of Integrative Oncology Currently Enrolling Patients

demerson — Thu, 26 Nov 2009 12:23:18 -0600

This is a link to CAM clinical trials found within the MD Anderson website-

"Please note: This list is current as of September 2008, but may not include all complementary therapy trials being conducted at that time. This is because some investigators must do their own recruiting for specific types of patients. Refer to Understanding Clinical Trials for what you need to know before enrolling in a clinical trial."

Financial assistance- copays

demerson — Thu, 19 Nov 2009 08:58:21 -0600

"We've had some of our support group members indicate they've received help from both the Chronic Disease Fund and also The Leukemia & Lymphoma Society."

Financial assistance- copays

demerson — Thu, 19 Nov 2009 08:55:17 -0600

"We've had some of our support group members indicate they've received help from both the Chronic Disease Fund and also The Leukemia & Lymphoma Society."

Sid's Myeloma Journey

demerson — Wed, 18 Nov 2009 10:50:17 -0600

Sid is a myeloma survivor diagnosed more than eight years ago of of 11/09. I found Sid's experiences and insights to be very helpful.

David Emerson

The SEER (surveillence epidemilology and end results) cancer stats website

demerson — Tue, 27 Oct 2009 08:28:57 -0500

When reading statistics about myeloma or any other cancer (and this site has them all!) remember the old saying that there are "lies, white lies and statistics." David Emerson

Myeloma Forums

demerson — Fri, 17 Jul 2009 10:25:17 -0500

Myeloma Forums is a complete aggregator of any sort of internet based, myeloma themed content- links to sites, forums, myeloma blogs, resources, everything.

http://www.myelomaforums....

Riding the Wave - Multiple Myeloma

demerson — Tue, 14 Jul 2009 14:58:58 -0500

Lori Puente, caregiver to her husband Dave, documents her caregiving experiences.

Myeloma statistics from the National Cancer Institute

Susan — Fri, 05 Jun 2009 08:06:30 -0500

The National Cancer Institute's Surveillance Epidemiology and End Results (SEER) reports provide statistics on prevalence, survival rates, and staging of myeloma.

Low Dose Naltrexone and Cancer

demerson — Tue, 26 May 2009 13:17:28 -0500

In Brief

Although prospective, controlled clinical trials on LDN in the treatment of cancer are yet to be accomplished, as of March 2004 clinical "off-label" use of this medication by Dr. Bihari in some 450 patients with cancer almost all of whom had failed to respond to standard treatments suggests that more than 60% of patients with cancer may significantly benefit from LDN.

Positive Psychology Center

elp5 — Thu, 21 May 2009 19:44:45 -0500

Positive Psychology is the scientific study of the strengths and virtues that enable individuals and communities to thrive. The Positive Psychology Center promotes research, training, education, and the dissemination of Positive Psychology. This field is founded on the belief that people want to lead meaningful and fulfilling lives, to cultivate what is best within themselves, and to enhance their experiences of love, work, and play.

polymvasurvivors.com

elp5 — Thu, 21 May 2009 19:37:55 -0500

The Binding Site

Susan — Thu, 21 May 2009 12:27:53 -0500

David Emerson gets freelight tests every six months to assess and monitor his myeloma. This is a website where you can get more information about the test.

Leukemia & Lymphoma Society - Health Insurance

Susan — Thu, 21 May 2009 12:14:04 -0500

The Leukemia and Lymphoma Society has put together some basic information about health insurance. This page explains how health insurance works, describes COBRA plans, patient rights, and advice for navigating the system. Links to more information are also provided. It also appears to be updated regularly. Here is an excerpt:

Authentic Happiness

Susan — Mon, 18 May 2009 10:10:31 -0500

This website has lots of information about positive psychology and includes questionnaires, resources, and the option to sign up for a newsletter. Here's what David Emerson has to say about positive psychology:

"I consider my state-of-mind critical to my success in managing my multiple myeloma. Positive Psychology has been a key therapy to manage my health the same way antineoplastons, nutrition, cancer supplements etc. have been.

Interactive map of Multiple Myeloma Experts

demerson — Thu, 02 Apr 2009 10:37:19 -0500

This link is to an interactive map for location of myeloma specialists-

Chemosensitity testing

demerson — Thu, 22 Jan 2009 11:02:34 -0600

Remission Labs Corp. provides laboratory services to physicians from all spectrums of medicine, with the main focus in the field of oncology. We specialize in the area of chemo-sensitivity and chemo-resistance testing. Our laboratory utilizes numerous advanced techniques in the field of molecular biology and genetics with expertise in micro-array analysis.

MMA Myeloma listser

demerson — Sun, 09 Nov 2008 11:35:52 -0600

The MMA listserv is one of the most helpful social support listservs or forums for myeloma survivors and caregivers available.

Beth's multiple myeloma blog

demerson — Sun, 09 Nov 2008 11:29:20 -0600

Beth Morgan authors "Beth's multiple myeloma blog" in addition to mmsupport.net and the mmsupport.net listserv. All three form of interactive health communication have helped me manage my myeloma over the years and I recommend all for both survivors and caregivers alike.

Mick Oakly's web site

demerson — Thu, 02 Oct 2008 12:10:57 -0500

Mick Oakly is an experienced myeloma survivor. He has been around the mm block and is knowledgeable.

Don's myelomahope or Don's myeloma blog

demerson — Thu, 02 Oct 2008 12:07:23 -0500

Don is a myeloma survivor who mixes specifics about his myeloma therapies with his lyfestyle. His running, nutrition, food photos, Don has it all.

Margaret's Corner-

demerson — Thu, 02 Oct 2008 12:03:52 -0500

Margaret is both a myeloma survivor and the unofficial curcumin queen. Her site is all about myeloma and curcumin.