The linked article below lists 10 of the most common anemia symptoms to watch out for. Among them:
- Paleness
- Trouble catching your breath
- Fatigue and dizziness
- Low Blood Pressure
- Chest Pains
- Leg Cramps
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David, this link does not work.
Anemia is the ONLY symptom of myeloma I have ever experienced, outside of having pneumonia before I was diagnosed.
One thine that I posed on the acor listserv that people severely questioned is something that I learned from the late cofounder of my local mm support group. For me and some others, there is an effect on the ears. It is as if you went underwater, came back up, and cannot clear your ears.
This has nothing to do with tinnitis or thalidomide. It has to do with not enough blood getting up to the ears since they are far ahead from the heart and blood has to flow up against gravity to reach them.
Also, according to my mother, a certain really smart doctor we know, has completely lost his mental faculty because of anemia caused by another type of cancer. If one suffers anemia for a very long time, apparently it will cause that person to lose it mentally.
Must have been what has happaned to me.
Alex-
I will post the link again below- if it does not work again, try going to the b-m.org site, go to the listserv page, go to side-effects then click on the "How do you know..." post- the link is there and it worked for me just now.
http://v.mercola.com/blog...
Linda M - Houston
Alex, first I enjoy your posting so much; thanks for all the brain power! I too am experiencing ear problems and have been puzzled by it for weeks. Dr. looked at it; I tried "drying them out" with alcohol to no avail. At least it is good to know I have company.
Linda M - Houston
Does anybody have any input/advice on whether to take curcurmin while in CR? I responded very well to first line of treatment dr. gave me (rev./dex); had SCT in May, and don't want to "mess up a good thing" - so to speak. Not sure if I would do the SCT if I had it to do over. It was a good experience, but with all the doubts from the experts, I might "save" that one for later. Thanks to all for the good information and encouragement. I was dx in Sept. 06.
I have been in cr since 4/99- when I learned of Margaret's success, read many of the articles she posted, put on her blog, etc, I added curcumin to my daily regimen. I take 800mgx3 each day- each 800mg cap has 5mg of bioprene included.
I do this as a preventative measure as well as for the other benefits of curcumin supplementation.
David
I don't see how taking curcumin while in CR could hurt. If anything, it would keep you in remission. I would start out slowly, though, and stop if I had any negative side effects. Not that I have had any, but others have reported a few.
Ok, now I REALLY will shut up! ;-) Margaret, Florence, Italy
The threads don't correspond, but anyway, I am answering Moodysgoose (interesting name, btw). I have had a thump-thump noise in my right ear for months; it gets worse at night, but dulls down when I lie on my right side. Puzzling. I went to an ear specialist, who cleaned my ears out (the noise got worse, actually), and told me I have a slight hearing loss in that ear. The thumping is in unison with my heart beat. Blood pressure is not high. Indeed, my diastolic pressure is a bit low, if anything. So I found it interesting to read about all these ear problems! Wonder if it's related to...anything? Margaret. Florence, Italy.
What I experience with my ears is a thumping. It seems to go away when I am less anemic. I am facing a quandary this week, as I am already anemic and Velcade will make me even more anemic. What Dr. Berenson wants me to do is Doxil/Velcade/dex twice a week, two weeks one week off. I have no doubt that it will help my counts. I also have no doubts it will make me even more anemic.
Maybe I did not give carao enough of a chance. The guy selling it (Lloyd Standish) told me it takes at least a month, and I had not given it that long. Procrit/Aranesp/Epogen also take 6 weeks.
In a real quandary here. Might try Velcade once a week at a higher than approved dosage instead. 1.5 mg/meter squared Body Surface Area--it was only approve at 1.3, but research report show it is more effective at an even higher dose. Dr. Berenson told me not to do this because of PN. Problem with that--I have never had any with Velcade nor with thalidomide. They throw the rest of what is in the vial away. Dr. Berenson said I am a lucky guy neer to have experienced any PN. I was not as lucky I think for thalidomide to put me in the nuthouse.
(Despite what some may think, I am no longer there!!)
As far as bioperine, you are all right about this. It is something I had forgotten. But bioperine will affect other drugs, and most of them are designed, or at least supposed to be, to be released into the body a certain way. Bioperine will mess this up. This is a really good point.
A very long time on my disastrous vacation trip to Florida, an Egyptian doctor cleaned my ears out for over an hour, thinking it would help me. It was extremely painful. My ears hurt two months later. Maybe it was intentional...I do not know. I was as sick as I have ever been on that trip, and I know if a virus can cause mm, that is where I picked it up (on the airplane trip there, actually).
Alex Maas
a.maas@cox.net
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