http://beating-myeloma.org/forum/recent-forum-comments Recent Forum Comments en http://beating-myeloma.org/forum/therapies/2008/10/27/low-dose-dexamethasone <p>Below is a post from today's acor listserv from Hardy Jones.  He mentions that his dex therapy is 8 mgs per week.  This is the lowest dex dosage I have come across.</p> <p>Lisa and others- perhaps this low a dose will make the steroids side effects easier to manage?  David</p> <p>PS- I have always attribute my leg weakness nerve damage- has anyone experienced the leg muscle weakness that Hardy refers to?  Anyone know of a way to fix or improve the weakness?</p> <p>To view my leg weakness go to</p> <p><a href="http://beating-myeloma.org/forum/therapies/2008/10/27/low-dose-dexamethasone">read more</a></p> http://beating-myeloma.org/forum/therapies/2008/10/27/low-dose-dexamethasone#comments Therapies dex prednisone steroid Mon, 27 Oct 2008 08:01:15 -0700 demerson 1295 at http://beating-myeloma.org http://beating-myeloma.org/forum/therapies/2008/10/27/low-dose-dexamethasone <p>Below is a post from today's acor listserv from Hardy Jones.  He mentions that his dex therapy is 8 mgs per week.  This is the lowest dex dosage I have come across.</p> <p>Lisa and others- perhaps this low a dose will make the steroids side effects easier to manage?  David</p> <p>PS- I have always attribute my leg weakness nerve damage- has anyone experienced the leg muscle weakness that Hardy refers to?  Anyone know of a way to fix or improve the weakness?</p> <p>To view my leg weakness go to</p> <p><a href="http://beating-myeloma.org/forum/therapies/2008/10/27/low-dose-dexamethasone">read more</a></p> http://beating-myeloma.org/forum/therapies/2008/10/27/low-dose-dexamethasone#comments Therapies dex prednisone steroid Mon, 27 Oct 2008 08:01:15 -0700 demerson 1295 at http://beating-myeloma.org http://beating-myeloma.org/forum/therapies/2008/10/27/low-dose-dexamethasone <p>Below is a post from today's acor listserv from Hardy Jones.  He mentions that his dex therapy is 8 mgs per week.  This is the lowest dex dosage I have come across.</p> <p>Lisa and others- perhaps this low a dose will make the steroids side effects easier to manage?  David</p> <p>PS- I have always attribute my leg weakness nerve damage- has anyone experienced the leg muscle weakness that Hardy refers to?  Anyone know of a way to fix or improve the weakness?</p> <p>To view my leg weakness go to</p> <p><a href="http://beating-myeloma.org/forum/therapies/2008/10/27/low-dose-dexamethasone">read more</a></p> http://beating-myeloma.org/forum/therapies/2008/10/27/low-dose-dexamethasone#comments Therapies dex prednisone steroid Mon, 27 Oct 2008 08:01:15 -0700 demerson 1295 at http://beating-myeloma.org http://beating-myeloma.org/forum/therapies/2008/10/27/low-dose-dexamethasone <p>Below is a post from today's acor listserv from Hardy Jones.  He mentions that his dex therapy is 8 mgs per week.  This is the lowest dex dosage I have come across.</p> <p>Lisa and others- perhaps this low a dose will make the steroids side effects easier to manage?  David</p> <p>PS- I have always attribute my leg weakness nerve damage- has anyone experienced the leg muscle weakness that Hardy refers to?  Anyone know of a way to fix or improve the weakness?</p> <p>To view my leg weakness go to</p> <p><a href="http://beating-myeloma.org/forum/therapies/2008/10/27/low-dose-dexamethasone">read more</a></p> http://beating-myeloma.org/forum/therapies/2008/10/27/low-dose-dexamethasone#comments Therapies dex prednisone steroid Mon, 27 Oct 2008 08:01:15 -0700 demerson 1295 at http://beating-myeloma.org http://beating-myeloma.org/forum/therapies/2008/10/27/low-dose-dexamethasone <p>Below is a post from today's acor listserv from Hardy Jones.  He mentions that his dex therapy is 8 mgs per week.  This is the lowest dex dosage I have come across.</p> <p>Lisa and others- perhaps this low a dose will make the steroids side effects easier to manage?  David</p> <p>PS- I have always attribute my leg weakness nerve damage- has anyone experienced the leg muscle weakness that Hardy refers to?  Anyone know of a way to fix or improve the weakness?</p> <p>To view my leg weakness go to</p> <p><a href="http://beating-myeloma.org/forum/therapies/2008/10/27/low-dose-dexamethasone">read more</a></p> http://beating-myeloma.org/forum/therapies/2008/10/27/low-dose-dexamethasone#comments Therapies dex prednisone steroid Mon, 27 Oct 2008 08:01:15 -0700 demerson 1295 at http://beating-myeloma.org http://beating-myeloma.org/forum/therapies/2008/10/27/low-dose-dexamethasone <p>Below is a post from today's acor listserv from Hardy Jones.  He mentions that his dex therapy is 8 mgs per week.  This is the lowest dex dosage I have come across.</p> <p>Lisa and others- perhaps this low a dose will make the steroids side effects easier to manage?  David</p> <p>PS- I have always attribute my leg weakness nerve damage- has anyone experienced the leg muscle weakness that Hardy refers to?  Anyone know of a way to fix or improve the weakness?</p> <p>To view my leg weakness go to</p> <p><a href="http://beating-myeloma.org/forum/therapies/2008/10/27/low-dose-dexamethasone">read more</a></p> http://beating-myeloma.org/forum/therapies/2008/10/27/low-dose-dexamethasone#comments Therapies dex prednisone steroid Mon, 27 Oct 2008 08:01:15 -0700 demerson 1295 at http://beating-myeloma.org http://beating-myeloma.org/Who-has-chemo-brain <p>Sometimes I feel like I feel I am the only one with chemo brain post a bmt. Does anyone else suffer from chemo brain?&nbsp; If so what therapies did you go through and how long have you experience symptoms?</p> http://beating-myeloma.org/Who-has-chemo-brain#comments Side Effects Sun, 09 Jul 2006 10:29:59 -0700 demerson 79 at http://beating-myeloma.org http://beating-myeloma.org/Who-has-chemo-brain <p>Sometimes I feel like I feel I am the only one with chemo brain post a bmt. Does anyone else suffer from chemo brain?&nbsp; If so what therapies did you go through and how long have you experience symptoms?</p> http://beating-myeloma.org/Who-has-chemo-brain#comments Side Effects Sun, 09 Jul 2006 10:29:59 -0700 demerson 79 at http://beating-myeloma.org http://beating-myeloma.org/Who-has-chemo-brain <p>Sometimes I feel like I feel I am the only one with chemo brain post a bmt. Does anyone else suffer from chemo brain?&nbsp; If so what therapies did you go through and how long have you experience symptoms?</p> http://beating-myeloma.org/Who-has-chemo-brain#comments Side Effects Sun, 09 Jul 2006 10:29:59 -0700 demerson 79 at http://beating-myeloma.org http://beating-myeloma.org/Who-has-chemo-brain <p>Sometimes I feel like I feel I am the only one with chemo brain post a bmt. Does anyone else suffer from chemo brain?&nbsp; If so what therapies did you go through and how long have you experience symptoms?</p> http://beating-myeloma.org/Who-has-chemo-brain#comments Side Effects Sun, 09 Jul 2006 10:29:59 -0700 demerson 79 at http://beating-myeloma.org http://beating-myeloma.org/Who-has-chemo-brain <p>Sometimes I feel like I feel I am the only one with chemo brain post a bmt. Does anyone else suffer from chemo brain?&nbsp; If so what therapies did you go through and how long have you experience symptoms?</p> http://beating-myeloma.org/Who-has-chemo-brain#comments Side Effects Sun, 09 Jul 2006 10:29:59 -0700 demerson 79 at http://beating-myeloma.org http://beating-myeloma.org/forum/general-mm/2008/10/23/phone-consultation <p>I want to schedule a long distance phone consulation with an MM expert on my husband's current condition. I was thinking about Dr. Durie. Does anyone have any particular recommendations for MM doctors who do long distance consultations?</p> <p>My husband's M spike has gone up since the summer from 0 (we enjoyed that for a mere 3 weeks) to 0.25 to 0.28 to 0.36. Our oncologist each time told my husband that the rise was "lab variation." Maybe, maybe not. I'd like to get another opinion.</p> <p><a href="http://beating-myeloma.org/forum/general-mm/2008/10/23/phone-consultation">read more</a></p> http://beating-myeloma.org/forum/general-mm/2008/10/23/phone-consultation#comments General MM consultation long distance Thu, 23 Oct 2008 13:19:26 -0700 Lisa 1287 at http://beating-myeloma.org http://beating-myeloma.org/forum/general-mm/2008/10/23/phone-consultation <p>I want to schedule a long distance phone consulation with an MM expert on my husband's current condition. I was thinking about Dr. Durie. Does anyone have any particular recommendations for MM doctors who do long distance consultations?</p> <p>My husband's M spike has gone up since the summer from 0 (we enjoyed that for a mere 3 weeks) to 0.25 to 0.28 to 0.36. Our oncologist each time told my husband that the rise was "lab variation." Maybe, maybe not. I'd like to get another opinion.</p> <p><a href="http://beating-myeloma.org/forum/general-mm/2008/10/23/phone-consultation">read more</a></p> http://beating-myeloma.org/forum/general-mm/2008/10/23/phone-consultation#comments General MM consultation long distance Thu, 23 Oct 2008 13:19:26 -0700 Lisa 1287 at http://beating-myeloma.org http://beating-myeloma.org/forum/general-mm/2008/10/23/phone-consultation <p>I want to schedule a long distance phone consulation with an MM expert on my husband's current condition. I was thinking about Dr. Durie. Does anyone have any particular recommendations for MM doctors who do long distance consultations?</p> <p>My husband's M spike has gone up since the summer from 0 (we enjoyed that for a mere 3 weeks) to 0.25 to 0.28 to 0.36. Our oncologist each time told my husband that the rise was "lab variation." Maybe, maybe not. I'd like to get another opinion.</p> <p><a href="http://beating-myeloma.org/forum/general-mm/2008/10/23/phone-consultation">read more</a></p> http://beating-myeloma.org/forum/general-mm/2008/10/23/phone-consultation#comments General MM consultation long distance Thu, 23 Oct 2008 13:19:26 -0700 Lisa 1287 at http://beating-myeloma.org http://beating-myeloma.org/forum/general-mm/2008/10/23/phone-consultation <p>I want to schedule a long distance phone consulation with an MM expert on my husband's current condition. I was thinking about Dr. Durie. Does anyone have any particular recommendations for MM doctors who do long distance consultations?</p> <p>My husband's M spike has gone up since the summer from 0 (we enjoyed that for a mere 3 weeks) to 0.25 to 0.28 to 0.36. Our oncologist each time told my husband that the rise was "lab variation." Maybe, maybe not. I'd like to get another opinion.</p> <p><a href="http://beating-myeloma.org/forum/general-mm/2008/10/23/phone-consultation">read more</a></p> http://beating-myeloma.org/forum/general-mm/2008/10/23/phone-consultation#comments General MM consultation long distance Thu, 23 Oct 2008 13:19:26 -0700 Lisa 1287 at http://beating-myeloma.org http://beating-myeloma.org/forum/general-mm/2008/10/23/phone-consultation <p>I want to schedule a long distance phone consulation with an MM expert on my husband's current condition. I was thinking about Dr. Durie. Does anyone have any particular recommendations for MM doctors who do long distance consultations?</p> <p>My husband's M spike has gone up since the summer from 0 (we enjoyed that for a mere 3 weeks) to 0.25 to 0.28 to 0.36. Our oncologist each time told my husband that the rise was "lab variation." Maybe, maybe not. I'd like to get another opinion.</p> <p><a href="http://beating-myeloma.org/forum/general-mm/2008/10/23/phone-consultation">read more</a></p> http://beating-myeloma.org/forum/general-mm/2008/10/23/phone-consultation#comments General MM consultation long distance Thu, 23 Oct 2008 13:19:26 -0700 Lisa 1287 at http://beating-myeloma.org http://beating-myeloma.org/forum/general-mm/2008/10/23/phone-consultation <p>I want to schedule a long distance phone consulation with an MM expert on my husband's current condition. I was thinking about Dr. Durie. Does anyone have any particular recommendations for MM doctors who do long distance consultations?</p> <p>My husband's M spike has gone up since the summer from 0 (we enjoyed that for a mere 3 weeks) to 0.25 to 0.28 to 0.36. Our oncologist each time told my husband that the rise was "lab variation." Maybe, maybe not. I'd like to get another opinion.</p> <p><a href="http://beating-myeloma.org/forum/general-mm/2008/10/23/phone-consultation">read more</a></p> http://beating-myeloma.org/forum/general-mm/2008/10/23/phone-consultation#comments General MM consultation long distance Thu, 23 Oct 2008 13:19:26 -0700 Lisa 1287 at http://beating-myeloma.org http://beating-myeloma.org/forum/general-mm/2008/10/23/phone-consultation <p>I want to schedule a long distance phone consulation with an MM expert on my husband's current condition. I was thinking about Dr. Durie. Does anyone have any particular recommendations for MM doctors who do long distance consultations?</p> <p>My husband's M spike has gone up since the summer from 0 (we enjoyed that for a mere 3 weeks) to 0.25 to 0.28 to 0.36. Our oncologist each time told my husband that the rise was "lab variation." Maybe, maybe not. I'd like to get another opinion.</p> <p><a href="http://beating-myeloma.org/forum/general-mm/2008/10/23/phone-consultation">read more</a></p> http://beating-myeloma.org/forum/general-mm/2008/10/23/phone-consultation#comments General MM consultation long distance Thu, 23 Oct 2008 13:19:26 -0700 Lisa 1287 at http://beating-myeloma.org http://beating-myeloma.org/forum/general-mm/2008/10/23/phone-consultation <p>I want to schedule a long distance phone consulation with an MM expert on my husband's current condition. I was thinking about Dr. Durie. Does anyone have any particular recommendations for MM doctors who do long distance consultations?</p> <p>My husband's M spike has gone up since the summer from 0 (we enjoyed that for a mere 3 weeks) to 0.25 to 0.28 to 0.36. Our oncologist each time told my husband that the rise was "lab variation." Maybe, maybe not. I'd like to get another opinion.</p> <p><a href="http://beating-myeloma.org/forum/general-mm/2008/10/23/phone-consultation">read more</a></p> http://beating-myeloma.org/forum/general-mm/2008/10/23/phone-consultation#comments General MM consultation long distance Thu, 23 Oct 2008 13:19:26 -0700 Lisa 1287 at http://beating-myeloma.org http://beating-myeloma.org/forum/general-mm/2008/10/23/phone-consultation <p>I want to schedule a long distance phone consulation with an MM expert on my husband's current condition. I was thinking about Dr. Durie. Does anyone have any particular recommendations for MM doctors who do long distance consultations?</p> <p>My husband's M spike has gone up since the summer from 0 (we enjoyed that for a mere 3 weeks) to 0.25 to 0.28 to 0.36. Our oncologist each time told my husband that the rise was "lab variation." Maybe, maybe not. I'd like to get another opinion.</p> <p><a href="http://beating-myeloma.org/forum/general-mm/2008/10/23/phone-consultation">read more</a></p> http://beating-myeloma.org/forum/general-mm/2008/10/23/phone-consultation#comments General MM consultation long distance Thu, 23 Oct 2008 13:19:26 -0700 Lisa 1287 at http://beating-myeloma.org http://beating-myeloma.org/forum/general-mm/2008/10/23/phone-consultation <p>I want to schedule a long distance phone consulation with an MM expert on my husband's current condition. I was thinking about Dr. Durie. Does anyone have any particular recommendations for MM doctors who do long distance consultations?</p> <p>My husband's M spike has gone up since the summer from 0 (we enjoyed that for a mere 3 weeks) to 0.25 to 0.28 to 0.36. Our oncologist each time told my husband that the rise was "lab variation." Maybe, maybe not. I'd like to get another opinion.</p> <p><a href="http://beating-myeloma.org/forum/general-mm/2008/10/23/phone-consultation">read more</a></p> http://beating-myeloma.org/forum/general-mm/2008/10/23/phone-consultation#comments General MM consultation long distance Thu, 23 Oct 2008 13:19:26 -0700 Lisa 1287 at http://beating-myeloma.org http://beating-myeloma.org/forum/general-mm/2008/10/23/phone-consultation <p>I want to schedule a long distance phone consulation with an MM expert on my husband's current condition. I was thinking about Dr. Durie. Does anyone have any particular recommendations for MM doctors who do long distance consultations?</p> <p>My husband's M spike has gone up since the summer from 0 (we enjoyed that for a mere 3 weeks) to 0.25 to 0.28 to 0.36. Our oncologist each time told my husband that the rise was "lab variation." Maybe, maybe not. I'd like to get another opinion.</p> <p><a href="http://beating-myeloma.org/forum/general-mm/2008/10/23/phone-consultation">read more</a></p> http://beating-myeloma.org/forum/general-mm/2008/10/23/phone-consultation#comments General MM consultation long distance Thu, 23 Oct 2008 13:19:26 -0700 Lisa 1287 at http://beating-myeloma.org http://beating-myeloma.org/article/therapies/piperine-increases-efficacy-of-curcumin <div style="border-bottom: 1px solid #999999; margin: 10px 0 20px 0;"><h3>New research is documenting the many health benefits of piperine</h3></div> <p>In a study reported in the September edition of the journal <em>Food and Chemical Toxicology</em> the effect of various doses of piperine was determined. Results showed that piperine at all dosage ranges used in the study possessed anti-depression like activity and cognitive enhancing effects at all treatment durations. Researchers determined that piperine is a functional food that improves brain functioning.</p> <p><a href="http://beating-myeloma.org/article/therapies/piperine-increases-efficacy-of-curcumin">read more</a></p> http://beating-myeloma.org/article/therapies/piperine-increases-efficacy-of-curcumin#comments Therapies 2008 NaturalNews.com November 17 online newsletter curcumin piperine Tue, 18 Nov 2008 07:07:32 -0800 demerson 1324 at http://beating-myeloma.org http://beating-myeloma.org/article/therapies/piperine-increases-efficacy-of-curcumin <div style="border-bottom: 1px solid #999999; margin: 10px 0 20px 0;"><h3>New research is documenting the many health benefits of piperine</h3></div> <p>In a study reported in the September edition of the journal <em>Food and Chemical Toxicology</em> the effect of various doses of piperine was determined. Results showed that piperine at all dosage ranges used in the study possessed anti-depression like activity and cognitive enhancing effects at all treatment durations. Researchers determined that piperine is a functional food that improves brain functioning.</p> <p><a href="http://beating-myeloma.org/article/therapies/piperine-increases-efficacy-of-curcumin">read more</a></p> http://beating-myeloma.org/article/therapies/piperine-increases-efficacy-of-curcumin#comments Therapies 2008 NaturalNews.com November 17 online newsletter curcumin piperine Tue, 18 Nov 2008 07:07:32 -0800 demerson 1324 at http://beating-myeloma.org http://beating-myeloma.org/article/therapies/piperine-increases-efficacy-of-curcumin <div style="border-bottom: 1px solid #999999; margin: 10px 0 20px 0;"><h3>New research is documenting the many health benefits of piperine</h3></div> <p>In a study reported in the September edition of the journal <em>Food and Chemical Toxicology</em> the effect of various doses of piperine was determined. Results showed that piperine at all dosage ranges used in the study possessed anti-depression like activity and cognitive enhancing effects at all treatment durations. Researchers determined that piperine is a functional food that improves brain functioning.</p> <p><a href="http://beating-myeloma.org/article/therapies/piperine-increases-efficacy-of-curcumin">read more</a></p> http://beating-myeloma.org/article/therapies/piperine-increases-efficacy-of-curcumin#comments Therapies 2008 NaturalNews.com November 17 online newsletter curcumin piperine Tue, 18 Nov 2008 07:07:32 -0800 demerson 1324 at http://beating-myeloma.org http://beating-myeloma.org/article/therapies/piperine-increases-efficacy-of-curcumin <div style="border-bottom: 1px solid #999999; margin: 10px 0 20px 0;"><h3>New research is documenting the many health benefits of piperine</h3></div> <p>In a study reported in the September edition of the journal <em>Food and Chemical Toxicology</em> the effect of various doses of piperine was determined. Results showed that piperine at all dosage ranges used in the study possessed anti-depression like activity and cognitive enhancing effects at all treatment durations. Researchers determined that piperine is a functional food that improves brain functioning.</p> <p><a href="http://beating-myeloma.org/article/therapies/piperine-increases-efficacy-of-curcumin">read more</a></p> http://beating-myeloma.org/article/therapies/piperine-increases-efficacy-of-curcumin#comments Therapies 2008 NaturalNews.com November 17 online newsletter curcumin piperine Tue, 18 Nov 2008 07:07:32 -0800 demerson 1324 at http://beating-myeloma.org http://beating-myeloma.org/article/therapies/piperine-increases-efficacy-of-curcumin <div style="border-bottom: 1px solid #999999; margin: 10px 0 20px 0;"><h3>New research is documenting the many health benefits of piperine</h3></div> <p>In a study reported in the September edition of the journal <em>Food and Chemical Toxicology</em> the effect of various doses of piperine was determined. Results showed that piperine at all dosage ranges used in the study possessed anti-depression like activity and cognitive enhancing effects at all treatment durations. Researchers determined that piperine is a functional food that improves brain functioning.</p> <p><a href="http://beating-myeloma.org/article/therapies/piperine-increases-efficacy-of-curcumin">read more</a></p> http://beating-myeloma.org/article/therapies/piperine-increases-efficacy-of-curcumin#comments Therapies 2008 NaturalNews.com November 17 online newsletter curcumin piperine Tue, 18 Nov 2008 07:07:32 -0800 demerson 1324 at http://beating-myeloma.org http://beating-myeloma.org/causes-of-myeloma <p>All I can ever read about the possible causes of mm is general environmental factors.&nbsp; Are there any other possible theories about possible causes of mm?</p> http://beating-myeloma.org/causes-of-myeloma#comments General MM Tue, 25 Jul 2006 08:47:27 -0700 demerson 85 at http://beating-myeloma.org http://beating-myeloma.org/causes-of-myeloma <p>All I can ever read about the possible causes of mm is general environmental factors.&nbsp; Are there any other possible theories about possible causes of mm?</p> http://beating-myeloma.org/causes-of-myeloma#comments General MM Tue, 25 Jul 2006 08:47:27 -0700 demerson 85 at http://beating-myeloma.org http://beating-myeloma.org/causes-of-myeloma <p>All I can ever read about the possible causes of mm is general environmental factors.&nbsp; Are there any other possible theories about possible causes of mm?</p> http://beating-myeloma.org/causes-of-myeloma#comments General MM Tue, 25 Jul 2006 08:47:27 -0700 demerson 85 at http://beating-myeloma.org http://beating-myeloma.org/causes-of-myeloma <p>All I can ever read about the possible causes of mm is general environmental factors.&nbsp; Are there any other possible theories about possible causes of mm?</p> http://beating-myeloma.org/causes-of-myeloma#comments General MM Tue, 25 Jul 2006 08:47:27 -0700 demerson 85 at http://beating-myeloma.org http://beating-myeloma.org/causes-of-myeloma <p>All I can ever read about the possible causes of mm is general environmental factors.&nbsp; Are there any other possible theories about possible causes of mm?</p> http://beating-myeloma.org/causes-of-myeloma#comments General MM Tue, 25 Jul 2006 08:47:27 -0700 demerson 85 at http://beating-myeloma.org http://beating-myeloma.org/causes-of-myeloma <p>All I can ever read about the possible causes of mm is general environmental factors.&nbsp; Are there any other possible theories about possible causes of mm?</p> http://beating-myeloma.org/causes-of-myeloma#comments General MM Tue, 25 Jul 2006 08:47:27 -0700 demerson 85 at http://beating-myeloma.org http://beating-myeloma.org/causes-of-myeloma <p>All I can ever read about the possible causes of mm is general environmental factors.&nbsp; Are there any other possible theories about possible causes of mm?</p> http://beating-myeloma.org/causes-of-myeloma#comments General MM Tue, 25 Jul 2006 08:47:27 -0700 demerson 85 at http://beating-myeloma.org http://beating-myeloma.org/causes-of-myeloma <p>All I can ever read about the possible causes of mm is general environmental factors.&nbsp; Are there any other possible theories about possible causes of mm?</p> http://beating-myeloma.org/causes-of-myeloma#comments General MM Tue, 25 Jul 2006 08:47:27 -0700 demerson 85 at http://beating-myeloma.org http://beating-myeloma.org/causes-of-myeloma <p>All I can ever read about the possible causes of mm is general environmental factors.&nbsp; Are there any other possible theories about possible causes of mm?</p> http://beating-myeloma.org/causes-of-myeloma#comments General MM Tue, 25 Jul 2006 08:47:27 -0700 demerson 85 at http://beating-myeloma.org http://beating-myeloma.org/causes-of-myeloma <p>All I can ever read about the possible causes of mm is general environmental factors.&nbsp; Are there any other possible theories about possible causes of mm?</p> http://beating-myeloma.org/causes-of-myeloma#comments General MM Tue, 25 Jul 2006 08:47:27 -0700 demerson 85 at http://beating-myeloma.org http://beating-myeloma.org/causes-of-myeloma <p>All I can ever read about the possible causes of mm is general environmental factors.&nbsp; Are there any other possible theories about possible causes of mm?</p> http://beating-myeloma.org/causes-of-myeloma#comments General MM Tue, 25 Jul 2006 08:47:27 -0700 demerson 85 at http://beating-myeloma.org http://beating-myeloma.org/causes-of-myeloma <p>All I can ever read about the possible causes of mm is general environmental factors.&nbsp; Are there any other possible theories about possible causes of mm?</p> http://beating-myeloma.org/causes-of-myeloma#comments General MM Tue, 25 Jul 2006 08:47:27 -0700 demerson 85 at http://beating-myeloma.org http://beating-myeloma.org/causes-of-myeloma <p>All I can ever read about the possible causes of mm is general environmental factors.&nbsp; Are there any other possible theories about possible causes of mm?</p> http://beating-myeloma.org/causes-of-myeloma#comments General MM Tue, 25 Jul 2006 08:47:27 -0700 demerson 85 at http://beating-myeloma.org http://beating-myeloma.org/causes-of-myeloma <p>All I can ever read about the possible causes of mm is general environmental factors.&nbsp; Are there any other possible theories about possible causes of mm?</p> http://beating-myeloma.org/causes-of-myeloma#comments General MM Tue, 25 Jul 2006 08:47:27 -0700 demerson 85 at http://beating-myeloma.org http://beating-myeloma.org/causes-of-myeloma <p>All I can ever read about the possible causes of mm is general environmental factors.&nbsp; Are there any other possible theories about possible causes of mm?</p> http://beating-myeloma.org/causes-of-myeloma#comments General MM Tue, 25 Jul 2006 08:47:27 -0700 demerson 85 at http://beating-myeloma.org http://beating-myeloma.org/causes-of-myeloma <p>All I can ever read about the possible causes of mm is general environmental factors.&nbsp; Are there any other possible theories about possible causes of mm?</p> http://beating-myeloma.org/causes-of-myeloma#comments General MM Tue, 25 Jul 2006 08:47:27 -0700 demerson 85 at http://beating-myeloma.org http://beating-myeloma.org/causes-of-myeloma <p>All I can ever read about the possible causes of mm is general environmental factors.&nbsp; Are there any other possible theories about possible causes of mm?</p> http://beating-myeloma.org/causes-of-myeloma#comments General MM Tue, 25 Jul 2006 08:47:27 -0700 demerson 85 at http://beating-myeloma.org http://beating-myeloma.org/causes-of-myeloma <p>All I can ever read about the possible causes of mm is general environmental factors.&nbsp; Are there any other possible theories about possible causes of mm?</p> http://beating-myeloma.org/causes-of-myeloma#comments General MM Tue, 25 Jul 2006 08:47:27 -0700 demerson 85 at http://beating-myeloma.org http://beating-myeloma.org/causes-of-myeloma <p>All I can ever read about the possible causes of mm is general environmental factors.&nbsp; Are there any other possible theories about possible causes of mm?</p> http://beating-myeloma.org/causes-of-myeloma#comments General MM Tue, 25 Jul 2006 08:47:27 -0700 demerson 85 at http://beating-myeloma.org http://beating-myeloma.org/causes-of-myeloma <p>All I can ever read about the possible causes of mm is general environmental factors.&nbsp; Are there any other possible theories about possible causes of mm?</p> http://beating-myeloma.org/causes-of-myeloma#comments General MM Tue, 25 Jul 2006 08:47:27 -0700 demerson 85 at http://beating-myeloma.org http://beating-myeloma.org/causes-of-myeloma <p>All I can ever read about the possible causes of mm is general environmental factors.&nbsp; Are there any other possible theories about possible causes of mm?</p> http://beating-myeloma.org/causes-of-myeloma#comments General MM Tue, 25 Jul 2006 08:47:27 -0700 demerson 85 at http://beating-myeloma.org http://beating-myeloma.org/causes-of-myeloma <p>All I can ever read about the possible causes of mm is general environmental factors.&nbsp; Are there any other possible theories about possible causes of mm?</p> http://beating-myeloma.org/causes-of-myeloma#comments General MM Tue, 25 Jul 2006 08:47:27 -0700 demerson 85 at http://beating-myeloma.org http://beating-myeloma.org/causes-of-myeloma <p>All I can ever read about the possible causes of mm is general environmental factors.&nbsp; Are there any other possible theories about possible causes of mm?</p> http://beating-myeloma.org/causes-of-myeloma#comments General MM Tue, 25 Jul 2006 08:47:27 -0700 demerson 85 at http://beating-myeloma.org http://beating-myeloma.org/causes-of-myeloma <p>All I can ever read about the possible causes of mm is general environmental factors.&nbsp; Are there any other possible theories about possible causes of mm?</p> http://beating-myeloma.org/causes-of-myeloma#comments General MM Tue, 25 Jul 2006 08:47:27 -0700 demerson 85 at http://beating-myeloma.org http://beating-myeloma.org/causes-of-myeloma <p>All I can ever read about the possible causes of mm is general environmental factors.&nbsp; Are there any other possible theories about possible causes of mm?</p> http://beating-myeloma.org/causes-of-myeloma#comments General MM Tue, 25 Jul 2006 08:47:27 -0700 demerson 85 at http://beating-myeloma.org http://beating-myeloma.org/causes-of-myeloma <p>All I can ever read about the possible causes of mm is general environmental factors.&nbsp; Are there any other possible theories about possible causes of mm?</p> http://beating-myeloma.org/causes-of-myeloma#comments General MM Tue, 25 Jul 2006 08:47:27 -0700 demerson 85 at http://beating-myeloma.org http://beating-myeloma.org/causes-of-myeloma <p>All I can ever read about the possible causes of mm is general environmental factors.&nbsp; Are there any other possible theories about possible causes of mm?</p> http://beating-myeloma.org/causes-of-myeloma#comments General MM Tue, 25 Jul 2006 08:47:27 -0700 demerson 85 at http://beating-myeloma.org http://beating-myeloma.org/causes-of-myeloma <p>All I can ever read about the possible causes of mm is general environmental factors.&nbsp; Are there any other possible theories about possible causes of mm?</p> http://beating-myeloma.org/causes-of-myeloma#comments General MM Tue, 25 Jul 2006 08:47:27 -0700 demerson 85 at http://beating-myeloma.org http://beating-myeloma.org/causes-of-myeloma <p>All I can ever read about the possible causes of mm is general environmental factors.&nbsp; Are there any other possible theories about possible causes of mm?</p> http://beating-myeloma.org/causes-of-myeloma#comments General MM Tue, 25 Jul 2006 08:47:27 -0700 demerson 85 at http://beating-myeloma.org http://beating-myeloma.org/causes-of-myeloma <p>All I can ever read about the possible causes of mm is general environmental factors.&nbsp; Are there any other possible theories about possible causes of mm?</p> http://beating-myeloma.org/causes-of-myeloma#comments General MM Tue, 25 Jul 2006 08:47:27 -0700 demerson 85 at http://beating-myeloma.org http://beating-myeloma.org/causes-of-myeloma <p>All I can ever read about the possible causes of mm is general environmental factors.&nbsp; Are there any other possible theories about possible causes of mm?</p> http://beating-myeloma.org/causes-of-myeloma#comments General MM Tue, 25 Jul 2006 08:47:27 -0700 demerson 85 at http://beating-myeloma.org http://beating-myeloma.org/causes-of-myeloma <p>All I can ever read about the possible causes of mm is general environmental factors.&nbsp; Are there any other possible theories about possible causes of mm?</p> http://beating-myeloma.org/causes-of-myeloma#comments General MM Tue, 25 Jul 2006 08:47:27 -0700 demerson 85 at http://beating-myeloma.org http://beating-myeloma.org/causes-of-myeloma <p>All I can ever read about the possible causes of mm is general environmental factors.&nbsp; Are there any other possible theories about possible causes of mm?</p> http://beating-myeloma.org/causes-of-myeloma#comments General MM Tue, 25 Jul 2006 08:47:27 -0700 demerson 85 at http://beating-myeloma.org http://beating-myeloma.org/causes-of-myeloma <p>All I can ever read about the possible causes of mm is general environmental factors.&nbsp; Are there any other possible theories about possible causes of mm?</p> http://beating-myeloma.org/causes-of-myeloma#comments General MM Tue, 25 Jul 2006 08:47:27 -0700 demerson 85 at http://beating-myeloma.org http://beating-myeloma.org/causes-of-myeloma <p>All I can ever read about the possible causes of mm is general environmental factors.&nbsp; Are there any other possible theories about possible causes of mm?</p> http://beating-myeloma.org/causes-of-myeloma#comments General MM Tue, 25 Jul 2006 08:47:27 -0700 demerson 85 at http://beating-myeloma.org http://beating-myeloma.org/causes-of-myeloma <p>All I can ever read about the possible causes of mm is general environmental factors.&nbsp; Are there any other possible theories about possible causes of mm?</p> http://beating-myeloma.org/causes-of-myeloma#comments General MM Tue, 25 Jul 2006 08:47:27 -0700 demerson 85 at http://beating-myeloma.org http://beating-myeloma.org/causes-of-myeloma <p>All I can ever read about the possible causes of mm is general environmental factors.&nbsp; Are there any other possible theories about possible causes of mm?</p> http://beating-myeloma.org/causes-of-myeloma#comments General MM Tue, 25 Jul 2006 08:47:27 -0700 demerson 85 at http://beating-myeloma.org http://beating-myeloma.org/causes-of-myeloma <p>All I can ever read about the possible causes of mm is general environmental factors.&nbsp; Are there any other possible theories about possible causes of mm?</p> http://beating-myeloma.org/causes-of-myeloma#comments General MM Tue, 25 Jul 2006 08:47:27 -0700 demerson 85 at http://beating-myeloma.org http://beating-myeloma.org/causes-of-myeloma <p>All I can ever read about the possible causes of mm is general environmental factors.&nbsp; Are there any other possible theories about possible causes of mm?</p> http://beating-myeloma.org/causes-of-myeloma#comments General MM Tue, 25 Jul 2006 08:47:27 -0700 demerson 85 at http://beating-myeloma.org http://beating-myeloma.org/causes-of-myeloma <p>All I can ever read about the possible causes of mm is general environmental factors.&nbsp; Are there any other possible theories about possible causes of mm?</p> http://beating-myeloma.org/causes-of-myeloma#comments General MM Tue, 25 Jul 2006 08:47:27 -0700 demerson 85 at http://beating-myeloma.org http://beating-myeloma.org/causes-of-myeloma <p>All I can ever read about the possible causes of mm is general environmental factors.&nbsp; Are there any other possible theories about possible causes of mm?</p> http://beating-myeloma.org/causes-of-myeloma#comments General MM Tue, 25 Jul 2006 08:47:27 -0700 demerson 85 at http://beating-myeloma.org http://beating-myeloma.org/causes-of-myeloma <p>All I can ever read about the possible causes of mm is general environmental factors.&nbsp; Are there any other possible theories about possible causes of mm?</p> http://beating-myeloma.org/causes-of-myeloma#comments General MM Tue, 25 Jul 2006 08:47:27 -0700 demerson 85 at http://beating-myeloma.org http://beating-myeloma.org/causes-of-myeloma <p>All I can ever read about the possible causes of mm is general environmental factors.&nbsp; Are there any other possible theories about possible causes of mm?</p> http://beating-myeloma.org/causes-of-myeloma#comments General MM Tue, 25 Jul 2006 08:47:27 -0700 demerson 85 at http://beating-myeloma.org http://beating-myeloma.org/causes-of-myeloma <p>All I can ever read about the possible causes of mm is general environmental factors.&nbsp; Are there any other possible theories about possible causes of mm?</p> http://beating-myeloma.org/causes-of-myeloma#comments General MM Tue, 25 Jul 2006 08:47:27 -0700 demerson 85 at http://beating-myeloma.org http://beating-myeloma.org/causes-of-myeloma <p>All I can ever read about the possible causes of mm is general environmental factors.&nbsp; Are there any other possible theories about possible causes of mm?</p> http://beating-myeloma.org/causes-of-myeloma#comments General MM Tue, 25 Jul 2006 08:47:27 -0700 demerson 85 at http://beating-myeloma.org http://beating-myeloma.org/causes-of-myeloma <p>All I can ever read about the possible causes of mm is general environmental factors.&nbsp; Are there any other possible theories about possible causes of mm?</p> http://beating-myeloma.org/causes-of-myeloma#comments General MM Tue, 25 Jul 2006 08:47:27 -0700 demerson 85 at http://beating-myeloma.org http://beating-myeloma.org/causes-of-myeloma <p>All I can ever read about the possible causes of mm is general environmental factors.&nbsp; Are there any other possible theories about possible causes of mm?</p> http://beating-myeloma.org/causes-of-myeloma#comments General MM Tue, 25 Jul 2006 08:47:27 -0700 demerson 85 at http://beating-myeloma.org http://beating-myeloma.org/causes-of-myeloma <p>All I can ever read about the possible causes of mm is general environmental factors.&nbsp; Are there any other possible theories about possible causes of mm?</p> http://beating-myeloma.org/causes-of-myeloma#comments General MM Tue, 25 Jul 2006 08:47:27 -0700 demerson 85 at http://beating-myeloma.org http://beating-myeloma.org/causes-of-myeloma <p>All I can ever read about the possible causes of mm is general environmental factors.&nbsp; Are there any other possible theories about possible causes of mm?</p> http://beating-myeloma.org/causes-of-myeloma#comments General MM Tue, 25 Jul 2006 08:47:27 -0700 demerson 85 at http://beating-myeloma.org http://beating-myeloma.org/causes-of-myeloma <p>All I can ever read about the possible causes of mm is general environmental factors.&nbsp; Are there any other possible theories about possible causes of mm?</p> http://beating-myeloma.org/causes-of-myeloma#comments General MM Tue, 25 Jul 2006 08:47:27 -0700 demerson 85 at http://beating-myeloma.org http://beating-myeloma.org/causes-of-myeloma <p>All I can ever read about the possible causes of mm is general environmental factors.&nbsp; Are there any other possible theories about possible causes of mm?</p> http://beating-myeloma.org/causes-of-myeloma#comments General MM Tue, 25 Jul 2006 08:47:27 -0700 demerson 85 at http://beating-myeloma.org http://beating-myeloma.org/causes-of-myeloma <p>All I can ever read about the possible causes of mm is general environmental factors.&nbsp; Are there any other possible theories about possible causes of mm?</p> http://beating-myeloma.org/causes-of-myeloma#comments General MM Tue, 25 Jul 2006 08:47:27 -0700 demerson 85 at http://beating-myeloma.org http://beating-myeloma.org/article/myeloma-issues/and-you-thought-the-debate-over-fluoridation-was-settled <div style="border-bottom: 1px solid #999999; margin: 10px 0 20px 0;"><h3>Is floride in our drinking water safe?</h3></div> <p>As a baby boomer growing up without fluoridation, I had 14 cavities before my 18th birthday, including seven at one particularly mortifying dental visit.</p> <p>A generation later, my teenage daughters, who've grown up in a fluoridated city, have a combined total of none.</p> <p><a href="http://beating-myeloma.org/article/myeloma-issues/and-you-thought-the-debate-over-fluoridation-was-settled">read more</a></p> http://beating-myeloma.org/article/myeloma-issues/and-you-thought-the-debate-over-fluoridation-was-settled#comments Myeloma Issues 11/4/08 Melinda Beck online edition The Wall Street Journal cancer Floride Tue, 04 Nov 2008 10:54:37 -0800 demerson 1303 at http://beating-myeloma.org http://beating-myeloma.org/article/myeloma-issues/and-you-thought-the-debate-over-fluoridation-was-settled <div style="border-bottom: 1px solid #999999; margin: 10px 0 20px 0;"><h3>Is floride in our drinking water safe?</h3></div> <p>As a baby boomer growing up without fluoridation, I had 14 cavities before my 18th birthday, including seven at one particularly mortifying dental visit.</p> <p>A generation later, my teenage daughters, who've grown up in a fluoridated city, have a combined total of none.</p> <p><a href="http://beating-myeloma.org/article/myeloma-issues/and-you-thought-the-debate-over-fluoridation-was-settled">read more</a></p> http://beating-myeloma.org/article/myeloma-issues/and-you-thought-the-debate-over-fluoridation-was-settled#comments Myeloma Issues 11/4/08 Melinda Beck online edition The Wall Street Journal cancer Floride Tue, 04 Nov 2008 10:54:37 -0800 demerson 1303 at http://beating-myeloma.org http://beating-myeloma.org/forum/general-mm/2008/11/06/sad-news-about-gary-takata <p>All- below is an post to the acor list about Gary Takata.  Gary was an interesting member both of acor and b-m.org.  Gary posted frequently to the acor list with links to studies.  And though he didn't comment on b-m.org much he emailed me often with comments about non-conventional issues.</p> <p>Clearly, Gary was firmly planted in the conventional world but was also interested in the non-conventional world of mm as well.  I will miss him.</p> <p>David</p> <p><a href="http://beating-myeloma.org/forum/general-mm/2008/11/06/sad-news-about-gary-takata">read more</a></p> http://beating-myeloma.org/forum/general-mm/2008/11/06/sad-news-about-gary-takata#comments General MM survivor Thu, 06 Nov 2008 06:27:52 -0800 demerson 1308 at http://beating-myeloma.org http://beating-myeloma.org/forum/general-mm/2008/11/06/sad-news-about-gary-takata <p>All- below is an post to the acor list about Gary Takata.  Gary was an interesting member both of acor and b-m.org.  Gary posted frequently to the acor list with links to studies.  And though he didn't comment on b-m.org much he emailed me often with comments about non-conventional issues.</p> <p>Clearly, Gary was firmly planted in the conventional world but was also interested in the non-conventional world of mm as well.  I will miss him.</p> <p>David</p> <p><a href="http://beating-myeloma.org/forum/general-mm/2008/11/06/sad-news-about-gary-takata">read more</a></p> http://beating-myeloma.org/forum/general-mm/2008/11/06/sad-news-about-gary-takata#comments General MM survivor Thu, 06 Nov 2008 06:27:52 -0800 demerson 1308 at http://beating-myeloma.org http://beating-myeloma.org/forum/general-mm/2008/11/06/sad-news-about-gary-takata <p>All- below is an post to the acor list about Gary Takata.  Gary was an interesting member both of acor and b-m.org.  Gary posted frequently to the acor list with links to studies.  And though he didn't comment on b-m.org much he emailed me often with comments about non-conventional issues.</p> <p>Clearly, Gary was firmly planted in the conventional world but was also interested in the non-conventional world of mm as well.  I will miss him.</p> <p>David</p> <p><a href="http://beating-myeloma.org/forum/general-mm/2008/11/06/sad-news-about-gary-takata">read more</a></p> http://beating-myeloma.org/forum/general-mm/2008/11/06/sad-news-about-gary-takata#comments General MM survivor Thu, 06 Nov 2008 06:27:52 -0800 demerson 1308 at http://beating-myeloma.org http://beating-myeloma.org/forum/therapies/2007/05/31/antioxidant-supplementation-and-chemoradiation <p>The link below is to a newswire release discussing the analysis of antioxidant supplementation on chemo/radiation therapy.&nbsp; The study will be presented at the upcoming ASCO meeting.&nbsp; Perhaps oncologists will begin encouraging mm survivors undergoing chemo/radiation to also supplement with antioxidants.</p> <p><a href="http://www.newswise.com/articles/view/530428/?sc=mwhp" title="http://www.newswise.com/articles/view/530428/?sc=mwhp">http://www.newswise.com/a...</a></p> <p>David</p> http://beating-myeloma.org/forum/therapies/2007/05/31/antioxidant-supplementation-and-chemoradiation#comments Therapies Thu, 31 May 2007 08:22:45 -0700 demerson 214 at http://beating-myeloma.org http://beating-myeloma.org/forum/therapies/2007/05/31/antioxidant-supplementation-and-chemoradiation <p>The link below is to a newswire release discussing the analysis of antioxidant supplementation on chemo/radiation therapy.&nbsp; The study will be presented at the upcoming ASCO meeting.&nbsp; Perhaps oncologists will begin encouraging mm survivors undergoing chemo/radiation to also supplement with antioxidants.</p> <p><a href="http://www.newswise.com/articles/view/530428/?sc=mwhp" title="http://www.newswise.com/articles/view/530428/?sc=mwhp">http://www.newswise.com/a...</a></p> <p>David</p> http://beating-myeloma.org/forum/therapies/2007/05/31/antioxidant-supplementation-and-chemoradiation#comments Therapies Thu, 31 May 2007 08:22:45 -0700 demerson 214 at http://beating-myeloma.org http://beating-myeloma.org/article/side-effects/long-term-outcomes-following-blood-clots <div style="border-bottom: 1px solid #999999; margin: 10px 0 20px 0;"><h3>BLOOD CLOTS </h3></div> <p>Newswise — Patients who develop a blood clot in their legs (deep vein thrombosis) or lungs (pulmonary embolism) are at risk for experiencing another blood clot within three years, and patients with pulmonary embolism have a higher risk of death, according to a report in the February 25 issue of <em>Archives of Internal Medicine</em>, one of the <em>JAMA/Archives</em> journals.</p> <p><a href="http://beating-myeloma.org/article/side-effects/long-term-outcomes-following-blood-clots">read more</a></p> http://beating-myeloma.org/article/side-effects/long-term-outcomes-following-blood-clots#comments Side Effects American Medical Association (AMA) Frederick A. Spencer M.D. pr newswire Thu 21-Feb-2008 blood clot pulminary embolism Wed, 29 Oct 2008 11:32:43 -0700 demerson 1297 at http://beating-myeloma.org http://beating-myeloma.org/article/side-effects/long-term-outcomes-following-blood-clots <div style="border-bottom: 1px solid #999999; margin: 10px 0 20px 0;"><h3>BLOOD CLOTS </h3></div> <p>Newswise — Patients who develop a blood clot in their legs (deep vein thrombosis) or lungs (pulmonary embolism) are at risk for experiencing another blood clot within three years, and patients with pulmonary embolism have a higher risk of death, according to a report in the February 25 issue of <em>Archives of Internal Medicine</em>, one of the <em>JAMA/Archives</em> journals.</p> <p><a href="http://beating-myeloma.org/article/side-effects/long-term-outcomes-following-blood-clots">read more</a></p> http://beating-myeloma.org/article/side-effects/long-term-outcomes-following-blood-clots#comments Side Effects American Medical Association (AMA) Frederick A. Spencer M.D. pr newswire Thu 21-Feb-2008 blood clot pulminary embolism Wed, 29 Oct 2008 11:32:43 -0700 demerson 1297 at http://beating-myeloma.org http://beating-myeloma.org/forum/therapies/2008/02/21/more-cyclopamine <p>This is a portion of a post from Nick on the mmasupport list on his use of cyclopamine- I think Nick's attitude is indicative of several things-</p> <p>1) Nick is clearly frustrated with the current state of conventional therapy-</p> <p>2) All conventional therapies have side effects- in many cases, long term negative side effects- </p> <p>3) The FDA's ability to manage mm therapies is limited at best- </p> <p>Since Nick is frustrated with the state of conventional mm care, he is willing to take this substantial risk on a therapy called cyclopamine.  The several studies by Ralph Moss that I am highlighting on the b-m.org forum/listserv outline through legitamate research that antioxidant support duriing chemo and radiation therapy may improve</p> <p>-the effectiveness of the conventional therapy and</p> <p>-the body's ability to handle the toxic side effects of the treatment (reduced side effects)</p> <p>In this age of studies showing the effectiveness of lower doses of thal, dex, rev, etc why don't oncologists promote antioxidant support during conventional therapy?!</p> <p>&quot;Finally the comment about we don't know what<br />Cyclopamine will do to you after 20 years makes me<br />laugh.  20 year survival with myeloma...I will take<br />that!  But really looking for a cure with Cyclopamine.<br />  Now I will be a little morbid, if this really works<br />out for me, you will not be attending my funeral, you<br />will not be around to make it. My last comment is<br />that, I am not worried about what the FDA thinks about<br />Cyclopamine.  I am not running a clinical trial here<br />where I need their approval.  I am trying to save my<br />life, and the FDA has no right to tell me I can't do<br />what it takes to save my life.&quot;<br />  Nick</p> <p> </p> http://beating-myeloma.org/forum/therapies/2008/02/21/more-cyclopamine#comments Therapies Thu, 21 Feb 2008 07:27:31 -0800 demerson 645 at http://beating-myeloma.org http://beating-myeloma.org/forum/therapies/2008/02/21/more-cyclopamine <p>This is a portion of a post from Nick on the mmasupport list on his use of cyclopamine- I think Nick's attitude is indicative of several things-</p> <p>1) Nick is clearly frustrated with the current state of conventional therapy-</p> <p>2) All conventional therapies have side effects- in many cases, long term negative side effects- </p> <p>3) The FDA's ability to manage mm therapies is limited at best- </p> <p>Since Nick is frustrated with the state of conventional mm care, he is willing to take this substantial risk on a therapy called cyclopamine.  The several studies by Ralph Moss that I am highlighting on the b-m.org forum/listserv outline through legitamate research that antioxidant support duriing chemo and radiation therapy may improve</p> <p>-the effectiveness of the conventional therapy and</p> <p>-the body's ability to handle the toxic side effects of the treatment (reduced side effects)</p> <p>In this age of studies showing the effectiveness of lower doses of thal, dex, rev, etc why don't oncologists promote antioxidant support during conventional therapy?!</p> <p>&quot;Finally the comment about we don't know what<br />Cyclopamine will do to you after 20 years makes me<br />laugh.  20 year survival with myeloma...I will take<br />that!  But really looking for a cure with Cyclopamine.<br />  Now I will be a little morbid, if this really works<br />out for me, you will not be attending my funeral, you<br />will not be around to make it. My last comment is<br />that, I am not worried about what the FDA thinks about<br />Cyclopamine.  I am not running a clinical trial here<br />where I need their approval.  I am trying to save my<br />life, and the FDA has no right to tell me I can't do<br />what it takes to save my life.&quot;<br />  Nick</p> <p> </p> http://beating-myeloma.org/forum/therapies/2008/02/21/more-cyclopamine#comments Therapies Thu, 21 Feb 2008 07:27:31 -0800 demerson 645 at http://beating-myeloma.org http://beating-myeloma.org/forum/therapies/2008/02/21/more-cyclopamine <p>This is a portion of a post from Nick on the mmasupport list on his use of cyclopamine- I think Nick's attitude is indicative of several things-</p> <p>1) Nick is clearly frustrated with the current state of conventional therapy-</p> <p>2) All conventional therapies have side effects- in many cases, long term negative side effects- </p> <p>3) The FDA's ability to manage mm therapies is limited at best- </p> <p>Since Nick is frustrated with the state of conventional mm care, he is willing to take this substantial risk on a therapy called cyclopamine.  The several studies by Ralph Moss that I am highlighting on the b-m.org forum/listserv outline through legitamate research that antioxidant support duriing chemo and radiation therapy may improve</p> <p>-the effectiveness of the conventional therapy and</p> <p>-the body's ability to handle the toxic side effects of the treatment (reduced side effects)</p> <p>In this age of studies showing the effectiveness of lower doses of thal, dex, rev, etc why don't oncologists promote antioxidant support during conventional therapy?!</p> <p>&quot;Finally the comment about we don't know what<br />Cyclopamine will do to you after 20 years makes me<br />laugh.  20 year survival with myeloma...I will take<br />that!  But really looking for a cure with Cyclopamine.<br />  Now I will be a little morbid, if this really works<br />out for me, you will not be attending my funeral, you<br />will not be around to make it. My last comment is<br />that, I am not worried about what the FDA thinks about<br />Cyclopamine.  I am not running a clinical trial here<br />where I need their approval.  I am trying to save my<br />life, and the FDA has no right to tell me I can't do<br />what it takes to save my life.&quot;<br />  Nick</p> <p> </p> http://beating-myeloma.org/forum/therapies/2008/02/21/more-cyclopamine#comments Therapies Thu, 21 Feb 2008 07:27:31 -0800 demerson 645 at http://beating-myeloma.org http://beating-myeloma.org/forum/therapies/2008/02/21/more-cyclopamine <p>This is a portion of a post from Nick on the mmasupport list on his use of cyclopamine- I think Nick's attitude is indicative of several things-</p> <p>1) Nick is clearly frustrated with the current state of conventional therapy-</p> <p>2) All conventional therapies have side effects- in many cases, long term negative side effects- </p> <p>3) The FDA's ability to manage mm therapies is limited at best- </p> <p>Since Nick is frustrated with the state of conventional mm care, he is willing to take this substantial risk on a therapy called cyclopamine.  The several studies by Ralph Moss that I am highlighting on the b-m.org forum/listserv outline through legitamate research that antioxidant support duriing chemo and radiation therapy may improve</p> <p>-the effectiveness of the conventional therapy and</p> <p>-the body's ability to handle the toxic side effects of the treatment (reduced side effects)</p> <p>In this age of studies showing the effectiveness of lower doses of thal, dex, rev, etc why don't oncologists promote antioxidant support during conventional therapy?!</p> <p>&quot;Finally the comment about we don't know what<br />Cyclopamine will do to you after 20 years makes me<br />laugh.  20 year survival with myeloma...I will take<br />that!  But really looking for a cure with Cyclopamine.<br />  Now I will be a little morbid, if this really works<br />out for me, you will not be attending my funeral, you<br />will not be around to make it. My last comment is<br />that, I am not worried about what the FDA thinks about<br />Cyclopamine.  I am not running a clinical trial here<br />where I need their approval.  I am trying to save my<br />life, and the FDA has no right to tell me I can't do<br />what it takes to save my life.&quot;<br />  Nick</p> <p> </p> http://beating-myeloma.org/forum/therapies/2008/02/21/more-cyclopamine#comments Therapies Thu, 21 Feb 2008 07:27:31 -0800 demerson 645 at http://beating-myeloma.org http://beating-myeloma.org/forum/therapies/2008/02/21/more-cyclopamine <p>This is a portion of a post from Nick on the mmasupport list on his use of cyclopamine- I think Nick's attitude is indicative of several things-</p> <p>1) Nick is clearly frustrated with the current state of conventional therapy-</p> <p>2) All conventional therapies have side effects- in many cases, long term negative side effects- </p> <p>3) The FDA's ability to manage mm therapies is limited at best- </p> <p>Since Nick is frustrated with the state of conventional mm care, he is willing to take this substantial risk on a therapy called cyclopamine.  The several studies by Ralph Moss that I am highlighting on the b-m.org forum/listserv outline through legitamate research that antioxidant support duriing chemo and radiation therapy may improve</p> <p>-the effectiveness of the conventional therapy and</p> <p>-the body's ability to handle the toxic side effects of the treatment (reduced side effects)</p> <p>In this age of studies showing the effectiveness of lower doses of thal, dex, rev, etc why don't oncologists promote antioxidant support during conventional therapy?!</p> <p>&quot;Finally the comment about we don't know what<br />Cyclopamine will do to you after 20 years makes me<br />laugh.  20 year survival with myeloma...I will take<br />that!  But really looking for a cure with Cyclopamine.<br />  Now I will be a little morbid, if this really works<br />out for me, you will not be attending my funeral, you<br />will not be around to make it. My last comment is<br />that, I am not worried about what the FDA thinks about<br />Cyclopamine.  I am not running a clinical trial here<br />where I need their approval.  I am trying to save my<br />life, and the FDA has no right to tell me I can't do<br />what it takes to save my life.&quot;<br />  Nick</p> <p> </p> http://beating-myeloma.org/forum/therapies/2008/02/21/more-cyclopamine#comments Therapies Thu, 21 Feb 2008 07:27:31 -0800 demerson 645 at http://beating-myeloma.org http://beating-myeloma.org/forum/therapies/2008/02/21/more-cyclopamine <p>This is a portion of a post from Nick on the mmasupport list on his use of cyclopamine- I think Nick's attitude is indicative of several things-</p> <p>1) Nick is clearly frustrated with the current state of conventional therapy-</p> <p>2) All conventional therapies have side effects- in many cases, long term negative side effects- </p> <p>3) The FDA's ability to manage mm therapies is limited at best- </p> <p>Since Nick is frustrated with the state of conventional mm care, he is willing to take this substantial risk on a therapy called cyclopamine.  The several studies by Ralph Moss that I am highlighting on the b-m.org forum/listserv outline through legitamate research that antioxidant support duriing chemo and radiation therapy may improve</p> <p>-the effectiveness of the conventional therapy and</p> <p>-the body's ability to handle the toxic side effects of the treatment (reduced side effects)</p> <p>In this age of studies showing the effectiveness of lower doses of thal, dex, rev, etc why don't oncologists promote antioxidant support during conventional therapy?!</p> <p>&quot;Finally the comment about we don't know what<br />Cyclopamine will do to you after 20 years makes me<br />laugh.  20 year survival with myeloma...I will take<br />that!  But really looking for a cure with Cyclopamine.<br />  Now I will be a little morbid, if this really works<br />out for me, you will not be attending my funeral, you<br />will not be around to make it. My last comment is<br />that, I am not worried about what the FDA thinks about<br />Cyclopamine.  I am not running a clinical trial here<br />where I need their approval.  I am trying to save my<br />life, and the FDA has no right to tell me I can't do<br />what it takes to save my life.&quot;<br />  Nick</p> <p> </p> http://beating-myeloma.org/forum/therapies/2008/02/21/more-cyclopamine#comments Therapies Thu, 21 Feb 2008 07:27:31 -0800 demerson 645 at http://beating-myeloma.org http://beating-myeloma.org/forum/therapies/2008/02/21/more-cyclopamine <p>This is a portion of a post from Nick on the mmasupport list on his use of cyclopamine- I think Nick's attitude is indicative of several things-</p> <p>1) Nick is clearly frustrated with the current state of conventional therapy-</p> <p>2) All conventional therapies have side effects- in many cases, long term negative side effects- </p> <p>3) The FDA's ability to manage mm therapies is limited at best- </p> <p>Since Nick is frustrated with the state of conventional mm care, he is willing to take this substantial risk on a therapy called cyclopamine.  The several studies by Ralph Moss that I am highlighting on the b-m.org forum/listserv outline through legitamate research that antioxidant support duriing chemo and radiation therapy may improve</p> <p>-the effectiveness of the conventional therapy and</p> <p>-the body's ability to handle the toxic side effects of the treatment (reduced side effects)</p> <p>In this age of studies showing the effectiveness of lower doses of thal, dex, rev, etc why don't oncologists promote antioxidant support during conventional therapy?!</p> <p>&quot;Finally the comment about we don't know what<br />Cyclopamine will do to you after 20 years makes me<br />laugh.  20 year survival with myeloma...I will take<br />that!  But really looking for a cure with Cyclopamine.<br />  Now I will be a little morbid, if this really works<br />out for me, you will not be attending my funeral, you<br />will not be around to make it. My last comment is<br />that, I am not worried about what the FDA thinks about<br />Cyclopamine.  I am not running a clinical trial here<br />where I need their approval.  I am trying to save my<br />life, and the FDA has no right to tell me I can't do<br />what it takes to save my life.&quot;<br />  Nick</p> <p> </p> http://beating-myeloma.org/forum/therapies/2008/02/21/more-cyclopamine#comments Therapies Thu, 21 Feb 2008 07:27:31 -0800 demerson 645 at http://beating-myeloma.org http://beating-myeloma.org/forum/therapies/2008/02/21/more-cyclopamine <p>This is a portion of a post from Nick on the mmasupport list on his use of cyclopamine- I think Nick's attitude is indicative of several things-</p> <p>1) Nick is clearly frustrated with the current state of conventional therapy-</p> <p>2) All conventional therapies have side effects- in many cases, long term negative side effects- </p> <p>3) The FDA's ability to manage mm therapies is limited at best- </p> <p>Since Nick is frustrated with the state of conventional mm care, he is willing to take this substantial risk on a therapy called cyclopamine.  The several studies by Ralph Moss that I am highlighting on the b-m.org forum/listserv outline through legitamate research that antioxidant support duriing chemo and radiation therapy may improve</p> <p>-the effectiveness of the conventional therapy and</p> <p>-the body's ability to handle the toxic side effects of the treatment (reduced side effects)</p> <p>In this age of studies showing the effectiveness of lower doses of thal, dex, rev, etc why don't oncologists promote antioxidant support during conventional therapy?!</p> <p>&quot;Finally the comment about we don't know what<br />Cyclopamine will do to you after 20 years makes me<br />laugh.  20 year survival with myeloma...I will take<br />that!  But really looking for a cure with Cyclopamine.<br />  Now I will be a little morbid, if this really works<br />out for me, you will not be attending my funeral, you<br />will not be around to make it. My last comment is<br />that, I am not worried about what the FDA thinks about<br />Cyclopamine.  I am not running a clinical trial here<br />where I need their approval.  I am trying to save my<br />life, and the FDA has no right to tell me I can't do<br />what it takes to save my life.&quot;<br />  Nick</p> <p> </p> http://beating-myeloma.org/forum/therapies/2008/02/21/more-cyclopamine#comments Therapies Thu, 21 Feb 2008 07:27:31 -0800 demerson 645 at http://beating-myeloma.org http://beating-myeloma.org/forum/therapies/2008/02/21/more-cyclopamine <p>This is a portion of a post from Nick on the mmasupport list on his use of cyclopamine- I think Nick's attitude is indicative of several things-</p> <p>1) Nick is clearly frustrated with the current state of conventional therapy-</p> <p>2) All conventional therapies have side effects- in many cases, long term negative side effects- </p> <p>3) The FDA's ability to manage mm therapies is limited at best- </p> <p>Since Nick is frustrated with the state of conventional mm care, he is willing to take this substantial risk on a therapy called cyclopamine.  The several studies by Ralph Moss that I am highlighting on the b-m.org forum/listserv outline through legitamate research that antioxidant support duriing chemo and radiation therapy may improve</p> <p>-the effectiveness of the conventional therapy and</p> <p>-the body's ability to handle the toxic side effects of the treatment (reduced side effects)</p> <p>In this age of studies showing the effectiveness of lower doses of thal, dex, rev, etc why don't oncologists promote antioxidant support during conventional therapy?!</p> <p>&quot;Finally the comment about we don't know what<br />Cyclopamine will do to you after 20 years makes me<br />laugh.  20 year survival with myeloma...I will take<br />that!  But really looking for a cure with Cyclopamine.<br />  Now I will be a little morbid, if this really works<br />out for me, you will not be attending my funeral, you<br />will not be around to make it. My last comment is<br />that, I am not worried about what the FDA thinks about<br />Cyclopamine.  I am not running a clinical trial here<br />where I need their approval.  I am trying to save my<br />life, and the FDA has no right to tell me I can't do<br />what it takes to save my life.&quot;<br />  Nick</p> <p> </p> http://beating-myeloma.org/forum/therapies/2008/02/21/more-cyclopamine#comments Therapies Thu, 21 Feb 2008 07:27:31 -0800 demerson 645 at http://beating-myeloma.org http://beating-myeloma.org/forum/therapies/2008/02/21/more-cyclopamine <p>This is a portion of a post from Nick on the mmasupport list on his use of cyclopamine- I think Nick's attitude is indicative of several things-</p> <p>1) Nick is clearly frustrated with the current state of conventional therapy-</p> <p>2) All conventional therapies have side effects- in many cases, long term negative side effects- </p> <p>3) The FDA's ability to manage mm therapies is limited at best- </p> <p>Since Nick is frustrated with the state of conventional mm care, he is willing to take this substantial risk on a therapy called cyclopamine.  The several studies by Ralph Moss that I am highlighting on the b-m.org forum/listserv outline through legitamate research that antioxidant support duriing chemo and radiation therapy may improve</p> <p>-the effectiveness of the conventional therapy and</p> <p>-the body's ability to handle the toxic side effects of the treatment (reduced side effects)</p> <p>In this age of studies showing the effectiveness of lower doses of thal, dex, rev, etc why don't oncologists promote antioxidant support during conventional therapy?!</p> <p>&quot;Finally the comment about we don't know what<br />Cyclopamine will do to you after 20 years makes me<br />laugh.  20 year survival with myeloma...I will take<br />that!  But really looking for a cure with Cyclopamine.<br />  Now I will be a little morbid, if this really works<br />out for me, you will not be attending my funeral, you<br />will not be around to make it. My last comment is<br />that, I am not worried about what the FDA thinks about<br />Cyclopamine.  I am not running a clinical trial here<br />where I need their approval.  I am trying to save my<br />life, and the FDA has no right to tell me I can't do<br />what it takes to save my life.&quot;<br />  Nick</p> <p> </p> http://beating-myeloma.org/forum/therapies/2008/02/21/more-cyclopamine#comments Therapies Thu, 21 Feb 2008 07:27:31 -0800 demerson 645 at http://beating-myeloma.org http://beating-myeloma.org/forum/therapies/2008/02/21/more-cyclopamine <p>This is a portion of a post from Nick on the mmasupport list on his use of cyclopamine- I think Nick's attitude is indicative of several things-</p> <p>1) Nick is clearly frustrated with the current state of conventional therapy-</p> <p>2) All conventional therapies have side effects- in many cases, long term negative side effects- </p> <p>3) The FDA's ability to manage mm therapies is limited at best- </p> <p>Since Nick is frustrated with the state of conventional mm care, he is willing to take this substantial risk on a therapy called cyclopamine.  The several studies by Ralph Moss that I am highlighting on the b-m.org forum/listserv outline through legitamate research that antioxidant support duriing chemo and radiation therapy may improve</p> <p>-the effectiveness of the conventional therapy and</p> <p>-the body's ability to handle the toxic side effects of the treatment (reduced side effects)</p> <p>In this age of studies showing the effectiveness of lower doses of thal, dex, rev, etc why don't oncologists promote antioxidant support during conventional therapy?!</p> <p>&quot;Finally the comment about we don't know what<br />Cyclopamine will do to you after 20 years makes me<br />laugh.  20 year survival with myeloma...I will take<br />that!  But really looking for a cure with Cyclopamine.<br />  Now I will be a little morbid, if this really works<br />out for me, you will not be attending my funeral, you<br />will not be around to make it. My last comment is<br />that, I am not worried about what the FDA thinks about<br />Cyclopamine.  I am not running a clinical trial here<br />where I need their approval.  I am trying to save my<br />life, and the FDA has no right to tell me I can't do<br />what it takes to save my life.&quot;<br />  Nick</p> <p> </p> http://beating-myeloma.org/forum/therapies/2008/02/21/more-cyclopamine#comments Therapies Thu, 21 Feb 2008 07:27:31 -0800 demerson 645 at http://beating-myeloma.org http://beating-myeloma.org/forum/therapies/2008/02/21/more-cyclopamine <p>This is a portion of a post from Nick on the mmasupport list on his use of cyclopamine- I think Nick's attitude is indicative of several things-</p> <p>1) Nick is clearly frustrated with the current state of conventional therapy-</p> <p>2) All conventional therapies have side effects- in many cases, long term negative side effects- </p> <p>3) The FDA's ability to manage mm therapies is limited at best- </p> <p>Since Nick is frustrated with the state of conventional mm care, he is willing to take this substantial risk on a therapy called cyclopamine.  The several studies by Ralph Moss that I am highlighting on the b-m.org forum/listserv outline through legitamate research that antioxidant support duriing chemo and radiation therapy may improve</p> <p>-the effectiveness of the conventional therapy and</p> <p>-the body's ability to handle the toxic side effects of the treatment (reduced side effects)</p> <p>In this age of studies showing the effectiveness of lower doses of thal, dex, rev, etc why don't oncologists promote antioxidant support during conventional therapy?!</p> <p>&quot;Finally the comment about we don't know what<br />Cyclopamine will do to you after 20 years makes me<br />laugh.  20 year survival with myeloma...I will take<br />that!  But really looking for a cure with Cyclopamine.<br />  Now I will be a little morbid, if this really works<br />out for me, you will not be attending my funeral, you<br />will not be around to make it. My last comment is<br />that, I am not worried about what the FDA thinks about<br />Cyclopamine.  I am not running a clinical trial here<br />where I need their approval.  I am trying to save my<br />life, and the FDA has no right to tell me I can't do<br />what it takes to save my life.&quot;<br />  Nick</p> <p> </p> http://beating-myeloma.org/forum/therapies/2008/02/21/more-cyclopamine#comments Therapies Thu, 21 Feb 2008 07:27:31 -0800 demerson 645 at http://beating-myeloma.org