Hello everyone
Hi I was Dx with MM on Jan,07 but I have doults I on Dex I also have Lupus,Sjogren and thyroid that makes my situation complicated for my Oncologist cause the symptoms with theses diseases are similar I had BMB last year I hd more than 10% of plasma cell but now am going to get a second opnion with another Oncologist on 10thof March am losing alot of protein I have proteinuria I aslo have positive Bence jones protein my oncologist thinks It could cause of my Lupus or MM apreciate any comment please
Mill
Hello Mill.
So sorry you're facing this situation. I think if you have doubts about the diagnosis it is really important to get another opinion before you start any kind of chemo, since the chemo itself does damage to your body. I'm no expert, having only been dealing with this disease for a year since my husband's diagnosis, but here are some questions that come to mind: Do you have any lytic lesions or bone damage? Have they done a skeletal xray or MRI? Do you have bone pain? Abnormally high calcium? Anemia? YOu say you're losing a lot of protein: how are they determining that? (I"m afraid I don't know what proteinuria is). Have they done serum electrophoresisor immunofixation? THat will show the presence of an abnormal M protein in your blood. The common types of MM are IgA and IgG, I think. If you've been given a diagnosis of MM you should alsohave been told what kind of MM, and you should have been assigned a stage (Stage 1, Stage II, Stage III.)
Best luck and let us know what you find out after the 10th.
Lisa, Nicosia, CyprusÂ
Hello Lisa
I went on the 10th got my second opnion I due have IgG kappa Myeloma I have to do my second BMB I do have high Calcium I do have alot of pain but in my case I have two other dseases Ihave Lupus and Sjogren that complicates thinks dont know what stage am in done all theses tests am have tests positive well take care best wishes for your husband
carmen
So sorry to hear the diagnosis. Hang in there. YOu might find some ideas for adjunctive things to try by reading this site.
LIsaÂ
Post new comment