Hi, I was shocked this past week to learn I have three tumors on my spine. I have had "stable" disease according to the doctors for almost 4 years. Only once during that time has my IGG gone beyond 1500 (it went to 1523) my M spike is always before 1 and my total protien is less then 6. This disease is incideous and sneaky. Bone scans, pet scans, MRI etc even though they themselves pose risks need to be done often. Unless you have 0 m spike, there is a disease process going on, you are just unaware of it. I just hope this is helpful to others. I have been feeling great, wonderful energy, look healthy and then bam.....it is there all the time. Pretty frightening if you ask me.
 Have a sunny Sunday.
 Mary Jo
Mary Jo; Did you have noticable symptoms or pain in your back? I was just wondering if there is any noticable warning sign to trigger all those tests again? Or should we make it a yearly event? Did you have dental problems? - Thanks for the heads up-
Hi, Mary Jo.
That is quite a shock to learn about your stable disease and those unexpected new spinal tumors. I appreciate your letting us know this can happen. What will you do to contain or eliminate the tumors? How often do you plan to have scans, and what kind, to detect bone lesions? Did you mention earlier that you take PolyMVA? If yes, can you let us know what it has done for you? How much do you take/day or week, etc.? Thanks so much for your valuable input. Best of luck to you.
Hi Mary Jo, I too recently had a tumor removed from the T-4T-5 area of my back. I was told it was not related to the MM as it was a meningioma. It had to be removed as it would cause paralysis, and hopefully they were able to remove all of it, but I still have to have another MRI in Jan. to make sure it is not returning. Have they told you what kind of tumor it is? I asked them to biopsy the bone they removed and they found 10% MM there. I hope you have a good prognosis with this problem, but like it was said earlier, even when we feel good, it is still lurking there and needs to be constantly monitored.
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