I have learned to ignore the frequent posts about new drugs in trial, as I found that most lead nowhere, and most do not do anything for us.

However, I do believe at this point in time, we actually have a lot of drugs that really might be very effective for us in trial.

Actimid, which is an analog of thalidomide and Revlimid,  has been in trial at the Mayo Clinic. The trial was recently suspended, but only because the doctors are trying to work out the dosages.  The name actually has been changed to palinomide or something like that.