Interactive Health Communication for longer, better lives.

Welcome to beating-myeloma.org

A non-traditional approach to healing multiple myeloma

Beating-myeloma.org was founded by multiple myeloma survivor David Emerson and is dedicated to helping everyone faced with myeloma manage their health and live longer, better lives. We are a 501c3 tax exempt nonprofit organization and do not sell or benefit from the sale of any treatment.

We invite you to:

Share

We provide an interactive forum for sharing information, advice, and a full spectrum of approaches to confronting disease. Visit the forum and read recent posts, or perform a search to bring up posts on the topic of your choice.

Learn

Beating-myeloma.org is built from the story and unique perspective of our founder David Emerson. Each section of our site contains David's experiences and recommendations. Learn about therapies, side effects, diagnosis, and much more by navigating through the menu to the left of this page.

Learn from other multiple myeloma survivors and caregivers on the forum/listerv. Receive up to date information about therapies, side effects, diagnosis, and other issues by subscribing to one or more of the S.D.I's, our e-newsletters.

Search

Are you interested in a specific topic or therapy? We provide a thorough search engine that will scour our site for the most up to date, relevant information. Go to our search page, or type your inquiry in the box at the top left hand corner of this page.

Join

Our site is built around our membership. Members can post to our forum, request monthly newsletters from David, and subscribe to a daily digest of the forum to be delivered to their email inboxes. Learn more about becoming a member (it's free).

Reading the stories of each cancer survivor will show you that the path to becoming a cancer survivor is not often straight and narrow, and most often is different for every person. But the moral of every cancer survivor story is to keep fighting. Below is one survivor story from a Beating Myeloma member:

Barbara Hammack Survivor Story
I'M A SURVIVOR! Barbara Hammack August 2007 Whenever I am privileged to speak to a newly-diagnosed myeloma patient, I always start by saying, "I was diagnosed in 1991." Once they quit gasping, I know I have already given them they hope they need. Nothing can prepare someone for learning they have an incurable disease, much less one that they had never even heard of. I was first told that I had a "suspicious" high protein level in July 1991. My internist had been follo...

Read Beating Myeloma Survivor Stories...

Interactive Health Communication helps multiple myeloma survivors and caregivers live longer, better lives. One way to interact with others is by sharing your experience with others and reading about other's experiences on our Forum. Below you will find a couple examples of Forum Posts from Beating Myeloma Members:

Consultation with Dana Farber
Today we had a phone consultation with Dana Farber. First off, I have to say we felt so encouraged after the phone call. I thought I would share some of the conversation. First of all, the mm specialist said that my husband's response to only thre...
Posted by: Lisa | Read More...

Sen. Ted Kennedy's brain tumor diagnosis- off topic
I understand that Ted Kennedy's brain tumor, glioblastoma multiform, is not myeloma. I am posting this article for two reasons. One, I chose to pursue antineoplaston therapy because I didn't have much choice. Ted Kennedy doesn't either. Two, I've alw...
Posted by: demerson | Read More...

These are email newsletters sent to beating-myeloma.org members each month or so that contain current, topical and relevant information on any or all of the following subjects: Therapies, Issues, Side Effects, Diagnosis, and General myeloma issues. Below you will find a couple examples of Beating Myeloma SDI Newsletters:

Side Effects SDI - Volume 1 Issue 5
The subject of this side effects sdi is peripheral neuropathy or pn. Many mmers have pn to some degree. I believe my pn was caused vincristine, the v in VAD. Others have gotten pn because of thalidomide or other chemotherapies. I have read that some pn...

General SDI - Volume 1 Issue 3
Below please find a link to an article that discusses an issue central to how the we look at cancer. When I attend myeloma support meetings and new therapies are discussed, the phrase used is "progression-free survival." If a given drug or drugs improve...